Fibromyalgia update

Things have been a little out of the norm as of late.
There were a few misunderstanding with family that have finally been laid to rest.
Lets just say that someone didn't realize that someone asked me for help and thought I was
purposely trying to get myself involved in someone else's life. Yeah. *sigh* I'm just
glad that it is all over with.

Work is going really well. I was pulled into the HR office the other day thinking that I must have somehow offended someone or did something wrong that I wasn't aware of. To my surprise they want to help me.

For those who are just now getting to reading my blog, I have Fibromyalgia. It is a medical illness that is classified as a muscle skeletal disorder, but really should be classified as a disease.
There are two types of Fibromyaglia out there.
1) People who cannot handle chemicals and odors
2) People who cannot handle most natural products.

I fit into the #2 category which many consider the worst. Naturals being used on the skin cause lumps of phosphates to build up in your muscles and when it breaks loose it causes severe nerve pain.

Anyways, back to the topic of work......

Like I mentioned I got pulled into the HR office because they want to help me.
Apparently there have been a bunch of changes made to the American Disability Act and my employer wants to see if I qualify so that they can get me  more comfortable work conditions and work with me on attendance so that I don't have to worry about my attendance points getting to high and me losing my job. How cool is that?

A couple of days later my Fibromyalgia started to flare up and my thinking started to become drastically impaired. I had a hard time trying to remember where to find the correct information in the computer and remembering what customers were telling me. I realized after a while what was happening and left work sick. On the drive home I was having a hard time driving my car, which has a clutch, because I could not feel the RPM's correctly and couldn't remember how to shift right.
Scared the crap out of me.
Lucky for me the boyfriend was home and he drove me to the doctor's office to get checked out and to get a doctor'[s note for work. While we were there we had ADA paperwork from my employer.

The PA was really pissed off as well. We have been having problems with my prescription insurance to cover my Lyrica medication. They had denied our first initial claim, and we sent them an appeals letter also.
My Prescription coverage group sent my PA a denial letter saying that there is no reason why I cannot try taking the generic of Nuerotin. However there is a problem. Nuerotin has not been tested for use on Fibromyalgia patients and therefore is considered off label use. This could cause serious problems with my health such as kidney failure or Stephen Johnson Syndrome.

I have never seen my PA so ticked off. It really kind of freaked me out. She was in all sorts of a rage. Just telling me that her appeal was declined made her red in the face.

By time the check up was complete, I had my doctor's note for work, my ADA paperwork filled out, gotten 2 months of Cymbalta samples to use since money is a little tight, and had also given my PA the telephone number for my prescription coverage so that she could call and yell at them.
All in all I feel it was a rather productive office visit.

I am doing a lot better. I had to stay home from work an extra day because the fogginess of memory was giving me some migraines and because I had some how formed some Fibromyalgia lumps on the bottoms of me feet that made it very painful to walk.

Other than the lumps on my feet and the loss of proper thinking recently, my Fibromyalgia is doing really good. I am very happy about that. This is the first winter since I was diagnosed in 2008 where when it snows I don't feel like some one is poking me with little tiny needles.

Some of you might be wondering 'Why isn't she on disability?'
For those who are not aware of how how the Medical Association classifies Fibromyalgia they consider it just an illness and not a severe enough one to be on disability. Most of the time they will not qualify someone with Fibromyalgia for disability unless they have another health condition on top of it, or unless the patient has a lawyer fight for them to get it.

So there you have it. I have Fibromyalgia and do not qualify for disability. So here I be. I do my best to keep on proper medication s and treatment and still keep a full time job. It is not the easiest thing to do, but I will never give up. I just keep on doing the best I can with what I've been given.